Endo Untangled Podcast

 Forget the candles and face masks. This episode gets real about what self-care actually looks like when you live with endometriosis or chronic pelvic pain. Dr Alecia Macrow and exercise physiologist Cherie Noble break down the Circle of Control and why so much energy gets wasted on things you can’t change.

 They explore how pain, sleep, work stress, and relationships all feed into each other, and share practical ways to take back a sense of control. You’ll learn why “no” is a complete sentence, why most people are either in turbo mode or wiped out, and how to take small, meaningful steps without piling on pressure. If you’re navigating chronic illness, invisible symptoms, or just the overwhelm of life, this episode offers real, practical strategies that actually work. 

In this episode, we talk with Professor Louise Hull, a reproductive medicine specialist and world-leading researcher in endometriosis. Louise shares her story, from IVF training at Cambridge to leading national research and policy here in Australia. 

She gives one of the clearest explanations of how endo causes pain, inflammation and damage, and how this links to fertility.  We explore:  

• Prof Louise's take on how endo actually causes pain 
• The link between endo and infertility, and what patients should know early 
• When surgery helps fertility, and when it might reduce ovarian reserve 
• Egg and embryo freezing, and how to make that decision 
• Impact of hormone treatments on long term fertility 
• What GPs and other health professionals often get wrong about fertility and endo 
• The myths, the gaps, and what Louise wishes every patient understood 

This is a grounded and compassionate conversation that will be useful for patients, GPs, and anyone supporting someone with endo.  Louise is also the lead investigator behind EndoZone, a national digital platform that gives patients and clinicians access to evidence-based, user-friendly information about endometriosis. Check out this excellent resource at www.endozone.com.au 

 In the second episode of our endometriosis imaging arc, we sit down with world class excision surgeon and leading pelvic sonologist Dr Matthew Leonardi to explore how high quality pelvic ultrasound transforms the way we understand endometriosis. 

We break down the full spectrum of ovarian cysts, from follicular and haemorrhagic cysts to dermoids and endometrioma, and unpack why the term “complex cyst” causes unnecessary fear and needs to disappear. Matthew also shares how recognising an endometrioma is often just the start, and how detailed ultrasound guides safer, more precise surgical planning. 

We finish with his interdisciplinary Endometriosis 360 model, where imaging, pelvic physio, dietetics and psychology work together to support better long term endo care. 

  Join us on Endo Untangled as Dr Alecia Macrow and Cherie Noble sit down with Alison Deslandes, a clinical academic sonographer and endometriosis researcher to explore how advanced imaging is reshaping the diagnostic landscape for people living with endometriosis and pelvic pain. We discuss:

• Why a “normal” scan doesn’t always mean everything’s fine, and what to ask if the standard ultrasound isn’t giving you answers 
• How specialised transvaginal ultrasound protocols and the “sliding sign” technique help detect deep-disease  
• Who the hell is Douglas and why is he in my pelvis? and other anatomy 

 In this episode of Endo Untangled, Dr Millie Mardon PhD shares how her long trips from Port Augusta to Adelaide as a teenager shaped her work in pain science. She explains how understanding what pain really is can help us change it, slowly but surely.

We talk about where pain discussions go wrong, how what we think, feel and see can shift the way pain shows up, and why personal stories matter in research and recovery.

This one will change how you think about pain.

 In Episode 08, we dive deep (no pun intended) with specialist colorectal and pelvic floor surgeon Dr. Chris Gillespie as he lifts the lid on everything your bowels don’t want you to ask. From the anatomy and reflexes behind a good poop, to what’s going on when your colonoscopy is “normal” but symptoms persist, we cover it all. 

We unravel the role of anorectal manometry, bust common myths (do laxatives really make your bowel “lazy”?), and get his go-to strategies for managing bowel dysfunction in real life. Whether you’re a clinician, patient, or just poop-curious — this one’s for you.  Tune in, flush away the stigma, and get the inside track on what your gut’s been trying to tell you. 

 Our collaboration grew out of a cloud of plaster dust, a half-finished practice, a fire engine out the front, and someone quite literally glued to the floor. Out of that chaotic, hilarious day came connection, trust, and the start of a long partnership with pelvic health physiotherapists Alycia Scannell and Carolyn Berry.   

In this episode, we talk about what pelvic health physiotherapy actually is, what happens in a consult for someone living with pelvic pain, and why the pelvis can get “cranky.” 

 In this episode of Endo Untangled, pain-titled physiotherapist Sophie Sheppard shares her lived experience of chronic fatigue (ME-CFS) as a teenager and later discovering she is autistic and ADHD. We unpack the science of persistent pain and how it reverberates through the nervous, endocrine and the immune systems (NEI ensemble) and explore how understanding the whole system impact changes care. 

 When one episode is not enough! We extended our recording with Dr Marie-Claire Seeley: researcher, lived experience advocate, CEO Australian POTS Foundation and dead-set legend, to talk POTS overlaps including endometriosis, pelvic pain, neurodivergence and hypermobility. We discuss investigation for POTS, how to do and interpret active stand test, what to rule out incl discussing heart tests, and discuss management. 

see the POTS foundation website for resources: https://potsfoundation.org.au/

 Unwell in central Asia. Dismissed as "just anxiety". Four kids, nursing shifts, and a fight to be believed. Today Dr Marie-Claire Seeley is CEO of the Australian POTS Foundation, using her PhD and lived experience to change care for people with POTS. 

see the POTS foundation website for resources: https://potsfoundation.org.au/

Why do so many endo appointments leave patients feeling unheard and doctors feeling stuck? In this episode, GP Dr Alecia Macrow and EP Cherie Noble sit down with Prof Susan Evans and Dr Carmel Reynolds to unpack why care can feel like control, why “they just want to put me on the pill” is such a common refrain in forums, and how sharp “ovary pains” aren’t always what they seem.

This is a constructive, honest conversation for patients, clinicians, and anyone wanting to better navigate endo care.

Why the fatigue? Why the headaches? Why the lightning arse?!

In this episode, we dive into the messy overlap of gut issues, pelvic floor dysfunction, heavy periods, and crushing fatigue, and why these symptoms so often show up together. 

 Exercise Physiologist Cherie Noble and Endo GP Dr Alecia Macrow talk through the 'why' of Endo Untangled, their personal stories, and what they're most looking forward to in the podcast.